Sunday 19 December 2010
Snowy Pics
For once i thought i would post some pics i have taken of the snow lately round my area. They are all taken from my bedroom window so theres a lot of snowy trees :) Ive got clinic tomorrow for my 2 weeks IV reassessment, so ill do a proper blog then...
Tuesday 14 December 2010
been a tough time of late...
I dont really remember what my last blog was about, so forgive me for anything i repeat.
Ive been really ill lately. Its THE worst infection ive ever had. It started with me getting a simple cold, which went as usual down onto my chest and decided to set up camp there :( I got progressively worse, and ended up on IVs much to my annoyance. I was on orals before hand, which were doing the trick combined with being compliant and regularly going to the gym, then i got that cold and it was all down hill from there really.
My lung function has dropped to its all time lowest, and is sitting at 39% at the moment, so everything is a real struggle. Mums been great, helping me to wash, washing my hair, helping me to keep up eating and drinking. Generally trying to keep me warm and feel the best i possibly can when feeling like crap if that makes sense. I didnt go into hospital straight away as i wanted to stay at home, and keep gaining weight, as that was the only thing that had gone up. But i ended up getting worse that i had no choice to go into hospital.
I went to town with mum on the 5th and walked up from the bottom of town to get a taxi home, when i had to stop and catch my breath coz it was really cold as well so that makes it extra harder. I ended up having a coughing fit, and coughing up a serious amount of blood. Cue freaking out!! I had never before coughed up that much, the most id ever coughed up before was a streak or two. Nothing huge at all! So to be stood outside the taxi rank coughing up loads of blood, and proper freaking out i was not in a good way. Thankfully i was with mum so she was helping me to keep calm and try to stop coughing so much to stop the blood. I got home and went to sleep on the sofa. As i had clinic the day after i didnt worry too much about ringing the hospital. I told them all when i got the hospital and they wanted me to go in that day but it wasnt really feasable as it meant going home to get things, and then coming all the way back. No way we could afford that or that i could manage it on the train again, i only just made it there in the first place!! So we agreed that id go home, they would ring every day to check on me, and if anything else happened or more blood then i would tell them and go in more than likely.
Just my luck i had my second episode of coughing up loads of blood again on monday evening. I woke up from sleeping on the sofa and was extremely hot from having a raging temperature, started coughing and had to run for the bathroom to cough up blood :| Not nice. I decided then to take a bag in with me to hospital the next day. I rang the clinic in the morning, left a message for the dr to ring me and left for my journey to hospital, thankfully again mum was with me, as she had rung up work and said she couldnt go in due to having to take me into hospital.
I was admitted that day, there was a right fiasco with waiting for the bed to get sorted, but i cant be bothered to go into that right now. I will say that i didnt get into my room until five to midnight tuesday, was severly pissed off and felt like total crap beyond words can describe!!
While in hospital i had my obs being done every hour as my heart rate was through the roof, so i ended up having to have an ECG and seeing the on call dr. She ordered me an xray, which i was finally taken down for around midnight wednesday night i think it was!! Not a happy bunny as i didnt get to bed until about 1am that night!! Once again pissed off. No wonder my heart rate was through the roof!
I was being ploughed with paracetamol as my temp went up to 39 degrees! I was freezing one minute, dripping with sweat the next!! Couldnt win, rather uncomfy as well :(
My sats were sitting around 90 which granted isnt as low as some peoples ive seen, but its very unusual for them to be like that, so they put me on 2 litres of oxygen as well. First time ive ever been on oxygen and so i was a little freaked out by it all! The tube thing is SO annoying to go to sleep wearing :| and as that was when my sats dropped even more i had to sleep with it on. Thankfully by Thursday i hadnt coughed up any more blood since admission due to some nifty tablets i was put on to help stop the bleeeding and settle my chest, my temp was a bit more stable without paracetamols, my heart rate was down to 118, still not great but thats normal for me really. Also my sats were sitting comforatably around 97 again without oxygen.
Dr came to see me on friday morning, as i was finally awake when they did rounds. and said that i was looking so much better since she saw me on admission day, and to be perfectly honest i felt so much better!! i had slept a fair amount which i deffinetly think helped me loads. Sleep is the best medicine... as well as laughter :p
So it was agreed that i could go home that day, and as i still had all my IV stuff at home it was the shortest discharge in history :D
Im still not better, and im still on IVs, but i am feeling SO much better now!! Im still sleeping a lot, but thats okay. My appetite is picking up loads as well which is great! Ive got a long way to go, to feeling miles better that i want to feel but i think ill get there eventually...
Ive been really ill lately. Its THE worst infection ive ever had. It started with me getting a simple cold, which went as usual down onto my chest and decided to set up camp there :( I got progressively worse, and ended up on IVs much to my annoyance. I was on orals before hand, which were doing the trick combined with being compliant and regularly going to the gym, then i got that cold and it was all down hill from there really.
My lung function has dropped to its all time lowest, and is sitting at 39% at the moment, so everything is a real struggle. Mums been great, helping me to wash, washing my hair, helping me to keep up eating and drinking. Generally trying to keep me warm and feel the best i possibly can when feeling like crap if that makes sense. I didnt go into hospital straight away as i wanted to stay at home, and keep gaining weight, as that was the only thing that had gone up. But i ended up getting worse that i had no choice to go into hospital.
I went to town with mum on the 5th and walked up from the bottom of town to get a taxi home, when i had to stop and catch my breath coz it was really cold as well so that makes it extra harder. I ended up having a coughing fit, and coughing up a serious amount of blood. Cue freaking out!! I had never before coughed up that much, the most id ever coughed up before was a streak or two. Nothing huge at all! So to be stood outside the taxi rank coughing up loads of blood, and proper freaking out i was not in a good way. Thankfully i was with mum so she was helping me to keep calm and try to stop coughing so much to stop the blood. I got home and went to sleep on the sofa. As i had clinic the day after i didnt worry too much about ringing the hospital. I told them all when i got the hospital and they wanted me to go in that day but it wasnt really feasable as it meant going home to get things, and then coming all the way back. No way we could afford that or that i could manage it on the train again, i only just made it there in the first place!! So we agreed that id go home, they would ring every day to check on me, and if anything else happened or more blood then i would tell them and go in more than likely.
Just my luck i had my second episode of coughing up loads of blood again on monday evening. I woke up from sleeping on the sofa and was extremely hot from having a raging temperature, started coughing and had to run for the bathroom to cough up blood :| Not nice. I decided then to take a bag in with me to hospital the next day. I rang the clinic in the morning, left a message for the dr to ring me and left for my journey to hospital, thankfully again mum was with me, as she had rung up work and said she couldnt go in due to having to take me into hospital.
I was admitted that day, there was a right fiasco with waiting for the bed to get sorted, but i cant be bothered to go into that right now. I will say that i didnt get into my room until five to midnight tuesday, was severly pissed off and felt like total crap beyond words can describe!!
While in hospital i had my obs being done every hour as my heart rate was through the roof, so i ended up having to have an ECG and seeing the on call dr. She ordered me an xray, which i was finally taken down for around midnight wednesday night i think it was!! Not a happy bunny as i didnt get to bed until about 1am that night!! Once again pissed off. No wonder my heart rate was through the roof!
I was being ploughed with paracetamol as my temp went up to 39 degrees! I was freezing one minute, dripping with sweat the next!! Couldnt win, rather uncomfy as well :(
My sats were sitting around 90 which granted isnt as low as some peoples ive seen, but its very unusual for them to be like that, so they put me on 2 litres of oxygen as well. First time ive ever been on oxygen and so i was a little freaked out by it all! The tube thing is SO annoying to go to sleep wearing :| and as that was when my sats dropped even more i had to sleep with it on. Thankfully by Thursday i hadnt coughed up any more blood since admission due to some nifty tablets i was put on to help stop the bleeeding and settle my chest, my temp was a bit more stable without paracetamols, my heart rate was down to 118, still not great but thats normal for me really. Also my sats were sitting comforatably around 97 again without oxygen.
Dr came to see me on friday morning, as i was finally awake when they did rounds. and said that i was looking so much better since she saw me on admission day, and to be perfectly honest i felt so much better!! i had slept a fair amount which i deffinetly think helped me loads. Sleep is the best medicine... as well as laughter :p
So it was agreed that i could go home that day, and as i still had all my IV stuff at home it was the shortest discharge in history :D
Im still not better, and im still on IVs, but i am feeling SO much better now!! Im still sleeping a lot, but thats okay. My appetite is picking up loads as well which is great! Ive got a long way to go, to feeling miles better that i want to feel but i think ill get there eventually...
Wednesday 1 December 2010
Feeling pretty rubbish :(
Im feeling so rubbish these past few weeks. I was doing really well months ago, then i got a cold and since then everything has just been pretty crap. And now ive got another cold. Perfect.
Its not as bad as the last one, but its still knocking me for six. Im still doing the gym, im really pushing myself there coz i want all this junk off my chest so i can breath a bit better again! I am doing well at the gym, ive done a bit of everything on my training plan now, a lot of cardio and some weights as well. Which granted im lifting the weight of a feather but that doesnt bother me really as i knew i was pretty weak, plus from all the joint pain i get, ive got lasting effects of it and my wrists are quite weak :| Ah the joys of CF! But its helping me to cough up loads of this crap on my chest, which is good, but its quite bad theres so much down there! :( I feel a round of IV's coming on.
Im so knackered! Im doing gym, and coursework and the occaisional day at Uni, which im usually pretty shattered for by the time i get there as i have to get up quite early, get a train, and then wait in the freezing cold until the bus decides to turn up. So im quite shocked i manage to just about stay awake in the lectures i do manage to get to! Granted gym, coursework and Uni doesnt sound like much to be doing, but when thats all im doing day in day out, it gets tedious and knackering after a while. Especially when you cant switch off at night to sleep properly :(
Coursework at the moment is a total joke. Ive got my digital media project going on which is basically my dissertation, then ive got a consultany project with a real client outside of the Uni with a group of other people. Another assignment that i have to have done for the 9th and ive got NO idea what the hell im doing for it, and another one due in on the 16th which is a series of mini projects ive been doing since like October or something. But the specifications we get for these assignments are made over techinical when theres absolutely no need for that, and then the tutors get all grumpy when so many students ask questions about everything! If they actually put things we needed to know in the spec we wouldnt have to clearly bother them with our queries.
Tomorrow im supposed to be handing in a 3000 word research report and also doing a presentation showing off a prototype of my media project so far. This im not looking forward to, and at this rate im not going to be able to do the presentation, 'coz ive got really bad chest pains and it hurts to breathe, move, cough, sneeze, hiccup, you name it and im practically crying with the pain at some points! It started at the weekend and then went away on tuesday so i was able to do the gym, and today its come back with vengance :( Not happy.
At least ive got hospital on friday, which is good and bad. Last time i went my lung function was down to 45% because of that annoying cold i had gotten last time. Then i think i had gotten some lung function back but now ive got another stupid cold my chest sounds like a car engine that wont start.Whether that has killed my lung function i thought i had gained i dont know, guess well find out on friday! Hopefully i will have gained weight tho, ive been eating mum out of house and home haha! I have noticed my energy has picked up a little bit, which usually only happens with weight gain for me more than a gain in lung function. Though i still dont want to get out of bed in the mornings, but thats only more because its freezing!! haha!
On a more happy note, ive had my hair cut :) It was getting really long which is what i wanted but it was getting unmanagable to wash it and comb it and general care of my hair. So i had it cut to just below my shoulders and styled a bit as well. I'll put a picture up soon, as well as a pic of my new tatt :D I had it done weeks ago, but its not long finished healing so it looks better for a picture now. I always find the smaller tattoos take longer to heal than the large ones ive had done. Weird.
Right better get on with this coursework :|
Its not as bad as the last one, but its still knocking me for six. Im still doing the gym, im really pushing myself there coz i want all this junk off my chest so i can breath a bit better again! I am doing well at the gym, ive done a bit of everything on my training plan now, a lot of cardio and some weights as well. Which granted im lifting the weight of a feather but that doesnt bother me really as i knew i was pretty weak, plus from all the joint pain i get, ive got lasting effects of it and my wrists are quite weak :| Ah the joys of CF! But its helping me to cough up loads of this crap on my chest, which is good, but its quite bad theres so much down there! :( I feel a round of IV's coming on.
Im so knackered! Im doing gym, and coursework and the occaisional day at Uni, which im usually pretty shattered for by the time i get there as i have to get up quite early, get a train, and then wait in the freezing cold until the bus decides to turn up. So im quite shocked i manage to just about stay awake in the lectures i do manage to get to! Granted gym, coursework and Uni doesnt sound like much to be doing, but when thats all im doing day in day out, it gets tedious and knackering after a while. Especially when you cant switch off at night to sleep properly :(
Coursework at the moment is a total joke. Ive got my digital media project going on which is basically my dissertation, then ive got a consultany project with a real client outside of the Uni with a group of other people. Another assignment that i have to have done for the 9th and ive got NO idea what the hell im doing for it, and another one due in on the 16th which is a series of mini projects ive been doing since like October or something. But the specifications we get for these assignments are made over techinical when theres absolutely no need for that, and then the tutors get all grumpy when so many students ask questions about everything! If they actually put things we needed to know in the spec we wouldnt have to clearly bother them with our queries.
Tomorrow im supposed to be handing in a 3000 word research report and also doing a presentation showing off a prototype of my media project so far. This im not looking forward to, and at this rate im not going to be able to do the presentation, 'coz ive got really bad chest pains and it hurts to breathe, move, cough, sneeze, hiccup, you name it and im practically crying with the pain at some points! It started at the weekend and then went away on tuesday so i was able to do the gym, and today its come back with vengance :( Not happy.
At least ive got hospital on friday, which is good and bad. Last time i went my lung function was down to 45% because of that annoying cold i had gotten last time. Then i think i had gotten some lung function back but now ive got another stupid cold my chest sounds like a car engine that wont start.Whether that has killed my lung function i thought i had gained i dont know, guess well find out on friday! Hopefully i will have gained weight tho, ive been eating mum out of house and home haha! I have noticed my energy has picked up a little bit, which usually only happens with weight gain for me more than a gain in lung function. Though i still dont want to get out of bed in the mornings, but thats only more because its freezing!! haha!
On a more happy note, ive had my hair cut :) It was getting really long which is what i wanted but it was getting unmanagable to wash it and comb it and general care of my hair. So i had it cut to just below my shoulders and styled a bit as well. I'll put a picture up soon, as well as a pic of my new tatt :D I had it done weeks ago, but its not long finished healing so it looks better for a picture now. I always find the smaller tattoos take longer to heal than the large ones ive had done. Weird.
Right better get on with this coursework :|
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