I'm really looking forward to Friday (24th) as I'm going back to Uni. Ill only be doing induction that day, so its all the welcome back talks and telling us if anything has changed - not too much i hope! I got to finally register online the other day so that's all sorted now.
I passed my resits!! :D I was extremely shocked, i honestly thought they hadn't gone to plan at all! on one of them i only did just pass by like 1 mark but still I PASSED :D I got a text from my friend to say they were up online and i did that arms flappy thing and got all flustered haha! I'm so happy i passed them though they were worrying me something chronic!
I got my new timetable as well the other day. Literally the best timetable in the world I'm sure!! I'm in on Mondays, Wednesdays and Thursdays. Ive got Tuesdays and now Fridays off! (we were in on Friday for the first 3 weeks but now they changed it) Its cut my travel costs down a bit so that pleased me, and my earliest start is 9am on a Thursday, which is also the day i finish the latest which is 4pm. Otherwise i start around 10am and finish sometime in the afternoon.
I'm still expecting the flood of work however so the days off will come in extremely handy for me eventually!
Living at home i think will help me out a ton as well, as i wont be living with the certain people on my course who make literally everything a competition which makes me feel really stressed more so. Most of the competitors on my course are on placement as well now so i wont even be in class with them either, which will make life so much better for me with regards to uni! Maybe now i can actually concentrate on the lectures and tutorials instead of sitting there getting all annoyed and upset 'coz i don't understand everything I'm meant to and they do. Sounds silly i know but that's just me really. If everyone else gets something and i don't, my brain pretty much just shuts down.
Ive got a few things to sort out with the DSA people at Uni, with regards to travel help and such and i need to sort something out for my notetakers. Last year i had two of my course mates taking them for me (they got paid more than i do for DLA in a month, maybe even a year, which is stupidly ridiculous as i don't think they should have been getting paid at all) but they are on placement as well now so ill have to sort something new out. I don't know if ill have one, as I've got my Dictaphone i got from my DSA equipment and i think i might concentrate more if I'm taking my own notes. Plus then ill understand them, as if i have a notetaker from the disability department, theres A) No guarantee that they will be there for all my lectures (totally defies the point of a notetaker to me) and B) It means ill understand what the topic(s) is about compared to someone taking notes who hasn't a clue what they are writing about and misses out all the important stuff. Which is why i had the people on my course take the notes last year as they knew what to do.
Anyway, other than all that I'm doing wellish health wise. Ive had a few episodes of chest pain and i had a plug the other day that i just woke up with, it was really painful and i began to think i had a partially collapsed lung, but then when i was coughing and i felt it start to shift i knew it was just a plug - thank god!! Ive never had a collapsed lung and i don't fancy it, but I've asked the team about it just so i know what to look out for. Ive started eating a LOT better now as well, I'm back to stuffing my face in the evenings and I'm eating breakfast again as well :) My energy is picking up nicely and i can now get out of bed properly around 10am if not before some mornings, without feeling like id been out partying all night. Ive started a sort of diary thing, its mostly for food, to show my dietician i do eat and that it is fattening foods and things like that. I hate my dietician, more so since she said you could give an anatomy lesson with my skinny arms!! I also put in things about physio in there as well, and whether I've been on any walks or something, and generally how I'm feeling that day. I started it mostly with just a food diary in mind, but i think it could benefit the other members of the team as well if i put other things in there as well.
Other than all that i don't think theres much else to tell really...
Wednesday 22 September 2010
Friday 3 September 2010
Update...
I'm, not really sure what this blog is about today, but i feel like i wanted to make an update...
I (hopefully) start back at Uni soon... It all depends on my resit results, which I'm supposed to get around the 17th September! If you don't pass all your resits then you have to attend some silly registration session at the uni to fill out paper work and the letter i got says to arrange to pay your fees.... I'm a bit worried that means they are implying the student loans company wont pay it if you don't pass resits, i need to look into that. If so that puts me in a situation as I've not got £3grand+ !
Well see, I'm sure the loans company would still pay it. I think if i had a sponsorship it would be a different situation.
Mums back at work now :( so its back to being on my own most of the day. I'm a bit concerned I'm going to slip back into that slump i was in 'coz i was so lonely and bored at the beginning of the summer hols, but I'm trying to make sure I've got something to do. I'm working through some more of my PHP text book today.
My next appointment at the hospital isn't until October now :D Ive gone from have an appointment every 2 weeks for ages to not needing one for 2 months!! My last appointment was one of the best I've had probably all year! Its been really crap health wise for me this year, and so to have such a good appointment was the best thing in the world! I actually left the hospital smiling for once instead of ringing mum up in a rage and being all moody.
My lung function had been doing really crap and i was down to the 40's region. 42% was what it had been in an appointment i had on the 6th August and i was booked in again for 2 weeks after that. I really put a lot of effort into getting it up there in those 2 weeks. I was doing physio and nebs twice a day, i was really trying to eat better (which was still very hard and i was on the anti sickness tabs) i was doing everything i could think of doing within the limits of what i felt i could do without collapsing. It worked that well that i ended up gaining 13% in my lung function on the 20th August :D Putting me now at 55% ! I realise this still isn't the most amazing number to have for lung function, but for months of effort not paying off, and being in the 40's region for so long, i pretty much cried when i saw that increase!! Considering i didn't think lung function test had gone that well!!
My weight was down, but as i tried to explain to the mean dietician about the sickness feeling when eating, and how hard it was to even eat a yogurt some days. But she doesn't get it. I hate her even more now, as i was sat in the room i was placed and as it was a bit hot in there i took my hoodie off just before she came in. Now i know my arms aren't exactly the fatest in the world but there was no need for what she said to me. She looked at my arms, and chuckled and said looking right at me, that you could use my arms as an anatomy lesson they are that skinny. I was fuming so much i actually wanted to choke her! It still makes me angry about it now thinking about it. I am really conscious of my arms, and when i was younger would wear baggy jumpers to hide the skinniness of them, it took me years to get the courage to sit outside wearing my vest top and actually showing my arms and collar bones (they really stick out and i hate it). So I'm trying to not let her ridiculously unfair and nasty comment affect me too much, and I've not told the team. i don't know if i will, as it doesn't look like shes eaten anything more than a sugar cube in the last year anyway so i don't see how she has the audacity to sit there and tell me to put cream on my porridge and eat more "filling foods", when she could nearly turn to the side and people might report her missing!!
Argh! I'm thinking of requesting to see another dietician but the other one doesn't seem to be around a great deal, which is a real shame as shes so lovely!
Rant over.
Otherwise i don't think theres much else to report on. Still waiting on the gym to be sorted, last i was told the payment was being sorted out, but that was weeks ago now, and i really want to get to the gym and put more effort in rather than puffing on a neb at my desk while playing solitaire all the time :p So I'm going to ring the physios and see whats happening.
Quick question for the CFers who read this before i go:
How do you sort out your chest when it feels really dry when coughing?
I'm drinking lots of fluids and eating much better as well, but every time i cough i can feel stuff on my chest, but cant shift it properly even with a neb as my chest and throat feels so dry when i cough...
Thanks in advance for any answers :)
I (hopefully) start back at Uni soon... It all depends on my resit results, which I'm supposed to get around the 17th September! If you don't pass all your resits then you have to attend some silly registration session at the uni to fill out paper work and the letter i got says to arrange to pay your fees.... I'm a bit worried that means they are implying the student loans company wont pay it if you don't pass resits, i need to look into that. If so that puts me in a situation as I've not got £3grand+ !
Well see, I'm sure the loans company would still pay it. I think if i had a sponsorship it would be a different situation.
Mums back at work now :( so its back to being on my own most of the day. I'm a bit concerned I'm going to slip back into that slump i was in 'coz i was so lonely and bored at the beginning of the summer hols, but I'm trying to make sure I've got something to do. I'm working through some more of my PHP text book today.
My next appointment at the hospital isn't until October now :D Ive gone from have an appointment every 2 weeks for ages to not needing one for 2 months!! My last appointment was one of the best I've had probably all year! Its been really crap health wise for me this year, and so to have such a good appointment was the best thing in the world! I actually left the hospital smiling for once instead of ringing mum up in a rage and being all moody.
My lung function had been doing really crap and i was down to the 40's region. 42% was what it had been in an appointment i had on the 6th August and i was booked in again for 2 weeks after that. I really put a lot of effort into getting it up there in those 2 weeks. I was doing physio and nebs twice a day, i was really trying to eat better (which was still very hard and i was on the anti sickness tabs) i was doing everything i could think of doing within the limits of what i felt i could do without collapsing. It worked that well that i ended up gaining 13% in my lung function on the 20th August :D Putting me now at 55% ! I realise this still isn't the most amazing number to have for lung function, but for months of effort not paying off, and being in the 40's region for so long, i pretty much cried when i saw that increase!! Considering i didn't think lung function test had gone that well!!
My weight was down, but as i tried to explain to the mean dietician about the sickness feeling when eating, and how hard it was to even eat a yogurt some days. But she doesn't get it. I hate her even more now, as i was sat in the room i was placed and as it was a bit hot in there i took my hoodie off just before she came in. Now i know my arms aren't exactly the fatest in the world but there was no need for what she said to me. She looked at my arms, and chuckled and said looking right at me, that you could use my arms as an anatomy lesson they are that skinny. I was fuming so much i actually wanted to choke her! It still makes me angry about it now thinking about it. I am really conscious of my arms, and when i was younger would wear baggy jumpers to hide the skinniness of them, it took me years to get the courage to sit outside wearing my vest top and actually showing my arms and collar bones (they really stick out and i hate it). So I'm trying to not let her ridiculously unfair and nasty comment affect me too much, and I've not told the team. i don't know if i will, as it doesn't look like shes eaten anything more than a sugar cube in the last year anyway so i don't see how she has the audacity to sit there and tell me to put cream on my porridge and eat more "filling foods", when she could nearly turn to the side and people might report her missing!!
Argh! I'm thinking of requesting to see another dietician but the other one doesn't seem to be around a great deal, which is a real shame as shes so lovely!
Rant over.
Otherwise i don't think theres much else to report on. Still waiting on the gym to be sorted, last i was told the payment was being sorted out, but that was weeks ago now, and i really want to get to the gym and put more effort in rather than puffing on a neb at my desk while playing solitaire all the time :p So I'm going to ring the physios and see whats happening.
Quick question for the CFers who read this before i go:
How do you sort out your chest when it feels really dry when coughing?
I'm drinking lots of fluids and eating much better as well, but every time i cough i can feel stuff on my chest, but cant shift it properly even with a neb as my chest and throat feels so dry when i cough...
Thanks in advance for any answers :)
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