Update...

I'm, not really sure what this blog is about today, but i feel like i wanted to make an update...

I (hopefully) start back at Uni soon... It all depends on my resit results, which I'm supposed to get around the 17th September! If you don't pass all your resits then you have to attend some silly registration session at the uni to fill out paper work and the letter i got says to arrange to pay your fees.... I'm a bit worried that means they are implying the student loans company wont pay it if you don't pass resits, i need to look into that. If so that puts me in a situation as I've not got £3grand+ !
Well see, I'm sure the loans company would still pay it. I think if i had a sponsorship it would be a different situation.

Mums back at work now :( so its back to being on my own most of the day. I'm a bit concerned I'm going to slip back into that slump i was in 'coz i was so lonely and bored at the beginning of the summer hols, but I'm trying to make sure I've got something to do. I'm working through some more of my PHP text book today.

My next appointment at the hospital isn't until October now :D Ive gone from have an appointment every 2 weeks for ages to not needing one for 2 months!! My last appointment was one of the best I've had probably all year! Its been really crap health wise for me this year, and so to have such a good appointment was the best thing in the world! I actually left the hospital smiling for once instead of ringing mum up in a rage and being all moody.
My lung function had been doing really crap and i was down to the 40's region. 42% was what it had been in an appointment i had on the 6th August and i was booked in again for 2 weeks after that. I really put a lot of effort into getting it up there in those 2 weeks. I was doing physio and nebs twice a day, i was really trying to eat better (which was still very hard and i was on the anti sickness tabs) i was doing everything i could think of doing within the limits of what i felt i could do without collapsing. It worked that well that i ended up gaining 13% in my lung function on the 20th August :D Putting me now at 55% ! I realise this still isn't the most amazing number to have for lung function, but for months of effort not paying off, and being in the 40's region for so long, i pretty much cried when i saw that increase!! Considering i didn't think lung function test had gone that well!!

My weight was down, but as i tried to explain to the mean dietician about the sickness feeling when eating, and how hard it was to even eat a yogurt some days. But she doesn't get it. I hate her even more now, as i was sat in the room i was placed and as it was a bit hot in there i took my hoodie off just before she came in. Now i know my arms aren't exactly the fatest in the world but there was no need for what she said to me. She looked at my arms, and chuckled and said looking right at me, that you could use my arms as an anatomy lesson they are that skinny. I was fuming so much i actually wanted to choke her! It still makes me angry about it now thinking about it. I am really conscious of my arms, and when i was younger would wear baggy jumpers to hide the skinniness of them, it took me years to get the courage to sit outside wearing my vest top and actually showing my arms and collar bones (they really stick out and i hate it). So I'm trying to not let her ridiculously unfair and nasty comment affect me too much, and I've not told the team. i don't know if i will, as it doesn't look like shes eaten anything more than a sugar cube in the last year anyway so i don't see how she has the audacity to sit there and tell me to put cream on my porridge and eat more "filling foods", when she could nearly turn to the side and people might report her missing!!
Argh! I'm thinking of requesting to see another dietician but the other one doesn't seem to be around a great deal, which is a real shame as shes so lovely!

Rant over.

Otherwise i don't think theres much else to report on. Still waiting on the gym to be sorted, last i was told the payment was being sorted out, but that was weeks ago now, and i really want to get to the gym and put more effort in rather than puffing on a neb at my desk while playing solitaire all the time :p So I'm going to ring the physios and see whats happening.

Quick question for the CFers who read this before i go:


How do you sort out your chest when it feels really dry when coughing?
I'm drinking lots of fluids and eating much better as well, but every time i cough i can feel stuff on my chest, but cant shift it properly even with a neb as my chest and throat feels so dry when i cough...

Thanks in advance for any answers :)