Been a while!

Ive been meaning to do a blog posting for a while now, but just kept thinking "oh ill do it later" but later never seemed to arrive.

Me and mum went to see my sister and brother in law recently. They have just moved into a caravan on some holiday park in Northampton. We caught the train quite early last friday and had to change at Didcot parkway to get to Oxford where they were meeting us with the car to drive the rest of the way there, otherwise we would have to go all the way up the country to come all the way back down and it was just stupid!
I managed okay in the morning, id been doing well with getting up and getting sorted recently and that morning was not much different. We got to didcot fine, but then i had to tackle the dam stairs!! Steep for me wasnt the word!! I had to stop lots of times, then we realised we were on the wrong platform and so i had to go all the way back down, along and up more stairs to get the right train! I was knackered :(

Eventually we got to Oxford and i felt like crap! I was cold, i was shaky, i was not myself at all and i couldnt stomach any food either. I tried to walk around the Primark we found in the town but it just wasnt happening at all for me. We got some lunch at BHS but i couldnt even manage to eat any jelly :( i had a pepsi which i realised was the wrong thing as its a cold drink, so mum got me a hot chocolate which after i burnt my tounge on (traditional with me and hot chocolate) warmed me up just lovely! We got back to my sisters and i just pretty much remember sleeping from then on, i know i had a raging migraine, so the Anadin i took knocked me out for that. I dont think i really made much of an appearance until the morning!

Much of my stay at my sisters was spent feeling incredibly ill, cold, shaky, racing heart, very hard to breath which only got worse as the week went on. Theres a place called Salcey Forest, and you can go walking in the forests they have there on the routes set out and they have it set up so you can walk literally amoung the treetops! I saw mums pics on her camera and its pretty beautiful up there. Unfortunately just the walk to the "rigging in the trees" pretty much killed me and my body refused to let me go on. It put me into a right horrid mood. Dont get me wrong i did enjoy the area and being in such a peaceful place, listening to the birds and watching the dogs jump in the river while their owner yells at them and worries about the interior of the car when they get back haha! I just wish i had been having a much healthier day to enjoy the walking bit as well.
When we got back from there i think i slept some more. I honestly think thats all i did was sleep and hold everyone up when we tried to go out. I felt so bad i ended up just sending the other three out to the places they wanted to go without me while i stayed home and rested and thats all i felt i could do :( I wouldnt have minded if i had been at home, but this was a break away we had planned for id say about a month and it was totally ruined for me from day 1!

I dont think it helped my breathing with the fact that my sister has a Gerbil and 3 Hamsters in the living room, plus a rather fluffy cat, and the cats litter tray although in another room down the hall smelt to high hell. Either way its put me off wanting another Hamster anymore. Ill stick with my little fish :)
Weve been home a few days now and the sunshine has been helping me feel a bit better. My chest is still awful and so full up and thick. Its keeping me up at night and making things very hard in the mornings again, mums back to washing my hair for me, and im back to having a bath or sit down shower coz i just cannot stand for long periods. Going out for now just panics me due to the fact i know i will feel like im sufforcating when walking and the pain in my chest i get. Me and mum have talked a lot recently, even before we went away about getting me a wheelchair for those really bad days so we can still go out. Now were talking about making it a permanent thing we take me out in until im back on my feet properly again - if i can go up again that is - were going to speak to my cf team on Tuesday at clinic and see what they say about if they can provide me with one or whatever.

I wanted to ask on Facebook about CF people and wheelchair useage, but no one ever answers my questions on there so i give up. But someone might see it on here possibly...

I was just wondering if any one does use one and how did they come about getting theirs, did they buy it themselves, did they even speak to their team? Some knowledge would be good :)